Objective: This paper presents preliminary data from an ongoing study measuring patient utilization of recommendations made through a pediatric neuropsychological evaluation and parent perception of usefulness. Method: Participants included of patients who underwent a neuropsychological evaluation through a Neuropsychology (Epilepsy) Clinic (n = 7). Data were gathered via chart review and semi-structured, follow-up interviews (yes/no and likert scale responses) with parents whose children were evaluated. Data include: recommendation type (e.g., follow-up diagnostic, therapeutic services) and if the recommendation was followed. When recommendations were not followed, information regarding whether recommendations were attempted or considered was obtained. Parent perception of the evaluation was also obtained. Results: 46% of the total recommendations made were followed. Of the participants that did not follow recommendations, 0% attempted to follow the recommendations, and 37% considered the recommendations. 42% of parents indicated the evaluation helped in improving their child's functioning. 71% reported the evaluation contributed to their understanding of the impact of their child's illness on his/her functioning, available services for their child, and their child's strengths and weaknesses. 85% reported the evaluation was generally helpful, and that their child is better off because of the evaluation. Conclusion: Results suggest that although the majority of parents reported the evaluation as helpful, common recommendations were followed by fewer than half of participants. Continued data collection will provide a better understanding of utilization of neuropsychological evaluation recommendations in families of children with complex medical conditions. Examination of reasons for non-utilization will provide insight into barriers families face in implementing services recommended in neuropsychological evaluations.
DEVELOPMENTAL AND PEDIATRIC: OTHER
Pediatric Neuropsychological Evaluations: Parent Utilization and Perception of Usefulness in an Epilepsy Population
D Kriz, K McKittrick, C Grantz, M Eng, M Nguyen-Driver, F Van Der Fluit, S Duvall; DEVELOPMENTAL AND PEDIATRIC: OTHER
Pediatric Neuropsychological Evaluations: Parent Utilization and Perception of Usefulness in an Epilepsy Population. Arch Clin Neuropsychol 2015; 30 (6): 540. doi: 10.1093/arclin/acv047.143
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