
Contents
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Vulnerability and Biomedicine Vulnerability and Biomedicine
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Narrative Identity and Vulnerability Narrative Identity and Vulnerability
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Damaging versus Absent Narratives of Identity Damaging versus Absent Narratives of Identity
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Narrative Vulnerability through Instability Narrative Vulnerability through Instability
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Narrative Vulnerability in Transplant World Narrative Vulnerability in Transplant World
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The Politics of Care: Relationality, Response, and Narrative Enrichment The Politics of Care: Relationality, Response, and Narrative Enrichment
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Narrative Enrichment Narrative Enrichment
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References References
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7 The Politics of Care: From Biomedical Transformation to Narrative Vulnerability
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Published:January 2021
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Abstract
The fact that illness creates vulnerability is taken for granted. In this chapter, however, I consider whether a biomedical intervention that ‘rescues’ a person from illness or disability necessarily reduces vulnerability. Biomedical intervention transforms a life story and so renders an ongoing identity narrative (temporarily) unusable; in doing so it generates forms of narrative vulnerability. This can be particularly damaging in situations when a new identity narrative is not readily available – if the intervention is very novel, for example. When biomedical interventions transform the lives of chronically ill or disabled people they alter identities as well as health status, and against the more tangible vulnerabilities of illness and impairment, narrative vulnerability is easily overlooked. Working from a personal example of dramatic and persisting narrative vulnerability following catastrophic organ failure and transplantation, I explore some of the consequences for patients and providers of care.
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