QOS-21
A MODEL OF CARE FOR PEDIATRIC CNS TUMOR PATIENTS

BACKGROUND: CNS tumors are the most common solid tumors in childhood. Given the complexity and comorbidities multiple health care workers from different disciplines are involved in the care. METHOD: Since 2008 a multidisciplinary team under the leadership of the neurooncologist for the care of pediatric CNS tumor patients was futher developed and prospectivly more disciplines were added due to the needs of the patients. RESULTS: Since 2008 around 24 patients with a new diagnosis of a pediatric CNS tumor and 5 relapses/ progression were treated on a yearly basis. Patients initally seen in the emergency room were visited by the neurosurgeon and neurooncologists following the initial imaging. Immediate inpatient care around the time of surgery was shared between these two disciplines. Disclosure was performed by the neurosurgeon and neurooncologist together including a dedicated social worker, the radiation oncologist was also present in case radiation therapy was needed. All these patients have had the same primary nurse/ case manager taking care of them since diagnosis. Given the different aspects of care the following disciplines were also part of the team: neuroradiology, neuropsychology, endocrinology, neuroophthalmology, social work, child life, occupational therapy, physiotherapy, dietician, interlink nurse and clinical research associate - all disciplines with a dedicated professional. Patients and parents do appreciate this model of care. CONCLUSION: Pediatric CNS tumor patients require a multidisciplinary care team with a dedicated case manager and a dedicated leader for optimal care.